Progeria affects approximately one in every 4 million to 8 million infants; there are only about 200 children living with it worldwide. The genetic mutation tied to it causes those with the disease to produce the protein progerin, which blocks normal cell function. They age up rapidly, their immune system weakens with time. They are prone to developing osteoporosis, a disease where bones become weak and are more likely to break. A weak person would surely break down. But a look at what Sam Berns says about it,
“All in all, I don’t waste energy feeling bad for myself,” Berns said. “I surround myself with people that I want to be with. And I keep moving forward.”
Let’s have a look at who Sam Bern was. Sam was diagnosed with Progeria, at the age of 2. A student at Foxborough High School — in his and the Patriots’ hometown, he joined the marching band. He used to play a specially designed snare drum. He recently achieved the rank of Eagle Scout in the Boy Scouts of America. He never let the that his average life span would be just 13, discourage him. And above all, he always kept his head high up.
Do not stand at my grave and weep.
I am not there; I do not sleep.
I am a thousand winds that blow.
I am the diamond glints on snow.
I am the sunlight on ripened grain.
I am the gentle autumn rain.
When you awaken in the morning’s hush
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry;
I am not there; I did not die
Sam passed away in 2014 when he was just 17. Reason for his death were complication from the rare genetic disease, according to the Progeria Research Foundation.